NTSOC has a client with a disability who has recently gifted her long flowing locks to another person with medical needs. Gracie Vigil, 13, has been with NTSOC since March 12, 2019. Her mother, Kelli Baggs, is a parent CNA. Gracie has Rett’s Syndrome.
Gracie donated her hair to Locks of Love, a nonprofit charity that provides custom-made hair prosthetics to disadvantaged children up to the age of 21 who have suffered hair loss due to medical conditions.
The haircut took approximately 7 and 1/2 hours.
According to the Rett Syndrome’s website:
“Rett syndrome is a rare genetic neurological disorder that affects 1 in 10,000 females (and even more rarely in males) and begins to display itself in missed milestones or regression at 6-18 months. Rett syndrome leads to severe impairments, affecting nearly every aspect of life: ability to speak, walk, eat and breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements while awake. Cognitive assessment in children with Rett syndrome is complicated, but we know that they understand far more than they can communicate to us, evidenced by their bright and attentive eyes, and their ability to express a wide spectrum of moods and emotions.”
Some of the symptoms of Rett Syndrome include the following:
• Loss of speech
• Loss of purposeful use of hands
• Involuntary hand movements such as handwashing
• Loss of mobility or gait disturbances
• Loss of muscle tone
• Seizures or Rett “episodes”
• Breathing issues
• Sleep disturbances
• Slowed rate of growth for head, feet, and hands
NTSOC commends Gracie, her mother Kelli, and father Zeke Vigil Jr., for helping another child or young adult in need.
Photo credit: Kelli Baggs
Hair stylist: Jenna West